genomics & society

Archive for the ‘Education’ Category

The ACMG Meeting in Charlotte: Geneticists Start Your Engines!

Posted by Myra I. Roche on March 21, 2012

Beginning next week, we will be reporting on interesting topics from the American College of Medical Genetics Meeting which will be held beginning March 28-31, 2012, in Charlotte, North Carolina.  We will also be posting about the short course (Tuesday, March, 27) entitled “Next Generation Sequencing: Clinical Utility, Laboratory Implementation and Bioinformatics Analysis” which promises to be a fun-filled, seven hour marathon session exploring every nook and cranny of nextgen sequencing.  Hope they’ll at least provide us with some cookies.

Other potentially interesting sessions include: Read the rest of this entry »


Posted in Education, Genetic Testing, Return of Results, Sequencing | Tagged: , , , | Leave a Comment »

Tell Us What You Think!

Posted by Myra I. Roche on March 7, 2012

What do you think about students using their own DNA for classroom activities ?  Click to vote in the poll,

Read the rest of this entry »

Posted in Education, Ethics, Infomed Consent, Sequencing | Tagged: , | 7 Comments »

Student Use of Their Own DNA in Classroom Activities

Posted by Myra I. Roche on March 7, 2012

Last week, our ELSI reading group began a series of three sessions devoted to the controversial issue of whether or not students should be encouraged/allowed to use their own DNA in classroom activities. Dr. Kelly Hogan, a senior lecturer in the Department of Biology, became interested in this topic when, after discussing the availability of direct to consumer (DTC) testing with her class, two of her students decided to ante up and have their genome sequenced. One wrote about her experience in this post last December. And the other students? The best guess was that it was only the $200 price tag that deterred them from diving headfirst into their own gene pool.  Some instructors believe that if students have access to their own genetic data, they will become more engaged and learning will be enhanced.  But, as the University of California-Berkeley found out last year, sponsoring this kind of engagement has its own price. Read the rest of this entry »

Posted in Education, Ethics, Infomed Consent, Sequencing | Tagged: , | Leave a Comment »

Genotype-driven research recruitment: Explanations, experiences, ethics

Posted by Marsha Michie on January 12, 2012

Several of us at the Center for Genomics and Society have been working on a project about genotype-driven research recruitment. What’s that, you ask? Well, I have made a self-guided presentation via that explains it and talks about some of the issues we examined.


Click on the right arrow (bottom of presentation) to prompt it to load – this may take a few moments. The word “More” should appear beside the right arrow. Click on “More” and then choose “Fullscreen” for best viewing. Use the right arrow to guide yourself through.

Or click this link to see the original:

Posted in Education | 4 Comments »

Genomic Health Literacy

Posted by Myra I. Roche on June 14, 2011

Health Literacy and Genetic Information

Health literacy, or rather, health illiteracy, is ubiquitous, correlated with worse chronic illness control, and increased emergency room usage.  As patients take (or are left with) more responsibility for making medical decisions, they increasingly rely on the internet for information, leaving those with low literacy, including parents, at considerable disadvantage.  While all medical specialties have barriers preventing patient understanding, the literacy hurdles in understanding genomic information are indeed so high that even other doctors find them difficult to scale.

What is health literacy and why should we care?  Read the rest of this entry »

Posted in Education, Health Literacy | 12 Comments »